In the Netherlands, a woman harbored a chilling secret for more than half a century. Every time she gazed upon the faces of those around her—whether they were loved ones, acquaintances, or colleagues—she witnessed their features distort into something alien and frightening.
Dark, scaly patches, snouts that stretched outward, and enormous eyes shimmering in hues of red, green, or yellow would replace familiar human features. To her, faces turned into visages of dragons, a phenomenon that occurred daily.
Throughout her early years, she concealed this bizarre reality. As a young girl, she assumed this was a universal experience. However, during her teenage years, she came to understand that her experiences were unique. By the time she reached adulthood, these visions had become so intrusive that they hampered her ability to engage in simple social exchanges.
Engaging in conversation was a draining ordeal, and making eye contact became a feat of immense discomfort. Despite these challenges, she succeeded in completing her education, raising a daughter, and maintaining a career as a school administrator, all while her perception of reality continued to deteriorate.
A Peculiar Neurological Condition: Seeing Dragons Instead of Faces
It was not until the age of 52 that she sought help at a psychiatric facility in The Hague. The medical team conducted standard evaluations including blood tests, neurological assessments, and an EEG, all of which indicated no abnormalities. However, an MRI scan uncovered minor lesions in the white matter near her lentiform nucleus, a critical region linked with memory, focus, and facial recognition. Though not recent, the damage was significant enough to disrupt normal facial processing in her brain.
The diagnosis was prosopometamorphopsia, an uncommon neurological disorder that warps facial perceptions. While most occurrences of this condition are temporary and stem from migraines, epilepsy, or head injuries, her condition was permanent and deeply ingrained. It is believed that her visual cortex might have developed atypically, perhaps due to a lack of oxygen around the time of her birth.
Beyond the draconian faces, she also experienced visions of faces in empty spaces, perceived movement in her peripheral vision, and even saw large insects crawling over her hands. Despite recognizing these as hallucinations, she was at a loss for how to handle them. Her plight eventually led her to reach out to the renowned neurologist Oliver Sacks, who facilitated a connection with a Dutch research team. Her case was later documented in The Lancet.
Her initial treatment with valproic acid was somewhat successful but disrupted her sleep significantly. Switching to rivastigmine provided enough relief from the hallucinations that she could function normally again. For the first time, the dragons began to recede.
Today, she continues in her role as a school administrator, and her life feels more stable. However, the hallucinations have not vanished entirely. Occasionally, when she looks at faces for too long, they still morph.
She notices them, acknowledges their presence, and simply continues with her life.
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Miles Harper focuses on optimizing your daily life. He shares practical strategies to improve your time management, well-being, and consumption habits, turning your routine into lasting success.